Lynden's Wish
For
the last two years the much-respected British R&B
singer-songwriter Lynden David Hall has been battling a rare form of
cancer known as Hodgkin’s Lymphoma disease. It is a form of cancer
that mainly affects young people in their 20’s and around 1400
people are diagnosed in then UK every year.
On November 15 2005, many of LDH's contemporaries performed a
cancer awareness and fund-raising event called Lynden's Wish. Mark
Thompson reports
Omar, Roachford, Shola Ama, Don E, Beverly Knight, Courtney Pine and
Ms Dynamite were Omar, Roachford, Shola Ama, Don-e, Beverly Knight,
Courtney Pine and Ms Dynamite were the headline acts, joined by some
talented newcomers and one steel pan, on the tiny stage of an intimate
Camden venue. Those of us who were fortunate enough to buy a ticket for
this sell-out were certainly not to be disappointed.
The Lynden's Wish event at London's Jazz Café on November 15 came about
as the remarkably talented Lynden David Hall tried to make something
positive out of the nightmare illness that he has been fighting for two
years. This night, with all proceeds going to cancer related charities,
was hopefully just a start in that process.
Lynden has Hodgkin's Lymphoma, a rare form of cancer that affects mainly
young people in their 20s. Around 1,400 people are diagnosed each year.
The only chance of a cure for some sufferers of this disease, like many similar forms of
cancer, is a bone marrow transplant either from specially developed stem
cells or ideally from a 100% matching donor.
Lynden's been in a major battle since he received a stem cell transplant
almost twelve months ago.
His 'wish' is that his experience and high profile will save at least
one life, by raising money, and more importantly, awareness of these
illnesses, particularly in the "communities of colour".
Because of the shortage of donors, if your ethnic background is anything
other than European, whether that's Asian, South American, African, or
Caribbean, your chances of finding a bone marrow donor match falls
massively from around one in five if you're white, to one 100,000 if
your not.
The African Caribbean Leukaemia Trust (ACLT) has been trying to raise
awareness in the Britain's black community, and was represented at the
event by its founders Orin Lewis and Beverly De-gale. Beverly is the
mother of Daniel De-Gale, whose life was saved after he received a
transplant in 1999, following the high-profile campaign, out of which
the ACLT was formed. The other charity to benefit last night was Rays Of
Sunshine, a children's charity that raises money to grant the sometimes
near impossible wishes of terminally ill children and the organisations
that support them.
For me, the event has a personal significance as my fiancée completed
her treatment for a life threatening form of Leukaemia exactly twelve
months ago this week. My wife (we married in March) hasn’t had need
for a bone marrow transplant yet, but should the illness return, she
could find herself in the same boat as Lynden and another high profile
member of the R&B community - DJ Swing, who was fortunate enough to
receive a transplant in the week before this event. After a long wait,
this is a risky time for him right now, although last I heard all was
going really well. One donation from an un-related young man has given
Swing, his family and his friends from the DJ For Life campaign, both a
reason and an opportunity to celebrate this Christmas.
The concert itself was both refreshing (non-smoking, so voices and
clothes stayed fresh!) and amazing. The crowd was warm when our host for
the night, June Sarpong, introduced Beverly Knight to open the night.
Fans of live music will remember Beverly and Lynden's amazing
performances when touring together in the late 1990’s as a landmark in
UK R&B. Her voice had as much soul and power as ever, and perhaps
because this was for a mate, possibly a little more passion than normal.
Great performances from the others followed, all supported by the
impressively tight house band. Highlights included an acoustic number
from Roachford; Omar and Courtney Pine combining on a near karaoke (as
the crowd knew every word!) performance of ‘There’s Nothing Like
This’ and unsigned singer Tawiah, definitely one to watch for the
future, tore up the place with Badu-style jazzy vocals on her track
'Flowing Away'.
Ms Dynamite's second effort of the night, 'Dy-Na-Mi-Tee' was also an
electrifying moment, partly because of a great tune and performance, but
mainly because of how she introduced the track. Niomi (a.k.a Ms
Dynamite) called Lynden's wife Nikki to the stage. She persuaded her to
ring the man himself in his hospital room so that the crowd from, in
Nikki's words, "Lynden's London home", could show him some
love. The packed venue fell silent as she said into her mobile "Mr
Hall, it's Mrs Hall. I have some people who want to say hello". As
all went wild and chanted his name, I had to fight back a tear as I
remembered all the time my wife and I had spent shut up in an isolation
room in Lewisham Hospital. Lynden, a performer even from a hospital bed,
just demanded the crowd come again, with just a little more noise.
The finale saw all the vocalists back on stage for a movingly joyous
performance of Lynden's anthem, 'Sexy Cinderella', which sent everyone
in the crowd home buzzing.
To the Halls and the people that supported them, I’d like to say a
huge thank you, for making this happen.
To everyone else, if you'd like to join me on the bone marrow register
and have the chance to give the gift of life, all you have to do is give
a tiny blood sample. The last London ACLT registration drive of 2005 was
on Saturday the 19th of November at the Hammersmith Hospital, but they
still have events in Middlesex and Manchester, where you could give this
most precious gift just in time for Xmas. Or contact the national blood
service for opportunities closer to you.
Our thoughts are with Lynden, Swing, their families and every other
patient currently battling with similar illnesses right now.
Unfortunately there are more of them than there needs to be.
Unlike with the lottery, there’s a real chance that it could be you,
who saves a life and makes Lynden's wish come true.
©
2005 Mark Thompson, first published on BBM December 2005
For more info contact:
ACLT: www.aclt.org, 020 8667
1122
The National Blood Service: https://secure.blood.co.uk/bonemarrow.asp,
08457 711 711
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Unknown Friend
This poem was written by Mark
Thompson, who is a carer of his wife, a relapsed Hodgkin’s Lymphoma
disease sufferer.
With the love of friends and family she overcame
this once before. New hurdles here to leap with me, she’ll overcome
these as well I’m sure.
She needs however something today that we
unfortunately could not lend. So with these words we look for help, to
an unrelated and, as yet, unknown friend.
Help beyond the many products of blood already
gratefully received. Now this new friend’s very bone marrow is
required for her to be relieved.
A brief blood test could be the start of a whole
new lease of life. Could end times of tribulation for the inspiration
that is my wife.
This donor could be short or tall, rich or poor
it’s all the same to us. Only speak in the Queen’s English, or in de
patois of Jamaica cuss.
Use the rhyming slang of Cockney’s, or speak in
Geordie vernacular. We don’t care where they have travelled from, no
distance is too far.
They could have themselves a PhD or not even know
how to spell. Use of deodorant is unimportant, their bone marrow will
not smell.
Their form need not be perfect, like the David of
Michelangelo. As no minor bodily defect in donated marrow would show.
To them the risks are minimal the possible benefits
immense. The opportunity to positively change the world in a truly
tangible sense.
This friend’s act is so amazing, they are a life
saver it’s true. But the thing that’s most amazing, is this friend
just might be you.
©
2006 Mark Thompson, first published on BBM February 2006
February 2006 Addendum:
Dr. Nicholas Roberts, a Mellon Career
Development Fellow at St. Catherine's College, Oxford, wrote in soon
after the news of LHD’s death became widespread, after reading our
‘Lynden’s Wish’ piece. He is a cured Hodgkin's Lymphoma sufferer
who drew our attention to a slight but potential misleading sentence,
which has now been amended. However, for the benefit of those who read
the earlier version and also because of the earlier version exists in
various outposts on cyberspace, we’ve reproduced Dr Roberts’
comments to clarify the issue.
I
am writing in order that you might contact Mr. Thompson and change some
extremely misleading and
factually incorrect details in his piece. He states that “The only
chance of a cure for this illness, like many similar forms of cancer, is
a bone marrow transplant either from specially developed stem cells or
ideally from a 100% matching donor”. This is simply not true. Stem
cell therapy is only necessary in the most advanced cases or in some
relapses. The vast majority of sufferers are treated with chemotherapy
and radiotherapy. In 85% of all cases, and 95% in early stage disease,
this gives complete and lasting remission. I am very concerned that
people will read this article and be wildly misinformed, and that it may
cause distress or worry to people who suffer from or develop Hodgkin's
in the future.
Mark Thompson adds this: The real point is
that we need more donors. I know about distress, as my wife relapsed in
December and now needs a transplant, and that is the angle from which
the piece is written and that was in keeping with Lynden's wish that his
profile should save at least one life.
For more information see the ACLT’s website www.aclt.org
or click Sarah
on the ACLT's Website. Or call them on
0208 667 1122.
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